OUR MISSION
The Magpie Fund is dedicated to helping the siblings of special needs children.
ABOUT THE MAGPIE FUND
Raising a child with special needs is expensive, and siblings often lose out when it comes to vacations, extracurricular classes, and activities. It is important to recognize the sacrifices they make to improve the quality of life for a brother or sister with special needs. The Magpie Fund helps the siblings of children with special needs or severe medical issues by providing a $1,000 scholarship for college, camps, or other classes like art or music.
MAGGIE GRACE LYONS
Maggie was born to Scott and Kathy Lyons with a rare form of epilepsy called Lennox-Gastaut Syndrome (LGS), but to her siblings Dan and Mary Kate she was the embodiment of love and sunshine. Sadly, Scott and Kathy lost their beautiful Magpie in 2016. In her memory they founded The Magpie Fund with the help of their son Dan and daughter Mary Kate.
LENNOX-GASTAUT SYNDROME
Lennox-Gastaut Syndrome (LGS) is a rare and often debilitating form of childhood-onset epilepsy. The syndrome is characterized by a triad of signs including multiple seizure types, moderate to severe cognitive impairment, and an abnormal EEG with slow spike-wave complexes. This triad of mixed seizures, abnormal EEG and intellectual impairment represents one of the most difficult forms of epilepsy to treat.
For more information, visit the LGS Foundation.
People who continue to have seizures are at greater risk of a number of complications, which is why preventing seizures and other problems is so important. The most serious complications are injuries and dying from seizures. This section gives frank information about one of the more common causes of dying from seizures called “Sudden Unexpected Death in Epilepsy,” which is abbreviated SUDEP.
INFORMATION & SUPPORT
INFORMATION & SUPPORT
LET YOUR LIGHT SHINE
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